MS/NDPH and drugs: My experience. Are you taking drugs?

In 22 years with multiple sclerosis (MS) I've never been on drugs for MS. Mind you, when I was first diagnosed, the side effects of the only drug available sounded worse than my MS symptoms. And the drug was not a cure; there ain't no cure for MS. It was just supposed to help moderate…

What do you do with your sickness-induced spare time?

I used to write for clients and conduct business writing and copywriting workshops. Can't train anymore. I can write, as you see I am doing now, but find the process of writing for clients arduous--the meetings, the focus that is required and even the actual writing. So I have retired, or have had retirement thrust upon…

Video blog: Just do it

My video blog, Just Do It, is not a Nike commercial. It's for those with MS and/or New Daily Persistent Headaches (NDPH). What do you do if you are chronically ill? You figure out what you can do, how to do it, and you … just do it! What choice do you have? Other than…

Video Blogs about me and my MS

If you like (or tolerate) my writing abut MS, you might want to see me speak about MS. Here are some of the titles of my MS video blogs: You have a chronic illness… What do you do, can you do, to get through your day? Having Projects when living with MS, NDPH, or any other disability (or…

I’m All In…

Every day for the last six and a half years, I have felt like crap. My incurable and untreatable (you would not believe the number of meds I've tried) New Daily Persistent Headache has been 24/7 unrelenting, with pain on a scale of 1 to 10 literally shooting up to a 20, but mostly hovering…

Sometimes I Sound Whiny…

I'm sick. I have MS (multiple sclerosis). Have had it for 22 years. First 15, symptoms came and went. Had months, many months in fact, when I was symptom-free and could work and play.... Last almost 7 years, the MS has progressed. Symptoms are persistent. Have had a new daily persistent headache for 6.5 years.…

MS Warrior talks to healthy people

MS Warrior talks to healthy people. He says some neutral things. He says some negative things. He says some nice things… Note: If you'd rather watch this as a video, go to paullima.com/ms and click on MS Warrior talks to healthy people. My name is Paul Lima and I have Multiple Sclerosis, or MS as…

Other than that, okay

It's a simple question. When asked, it's one that I have difficulty answering. Or should I say it is one that I have difficulty answering honestly. When somebody asks, "How are you?" I tell a white lie. I say, "Okay." I don't ever say "Fine" or "Good." Those would be damnable lies. But I never…