If you like (or tolerate) my writing abut MS, you might want to see me speak about MS. Here are some of the titles of my MS video blogs: You have a chronic illness… What do you do, can you do, to get through your day? Having Projects when living with MS, NDPH, or any other disability (or…
I’m All In…
Every day for the last six and a half years, I have felt like crap. My incurable and untreatable (you would not believe the number of meds I've tried) New Daily Persistent Headache has been 24/7 unrelenting, with pain on a scale of 1 to 10 literally shooting up to a 20, but mostly hovering…
MS Warrior’s Singing Got Me Writing, Again
Paul Digby is a fellow MS warrior. He was a composer and piano payer until MS took away his ability to play the piano. So what did he do? He was not a singer, but he started to sing. I mean really sing. You can hear him singing here. (I particularly like At Last, but…
Pianist with MS turns to singing
I met a man with MS. He used to compose music and play the piano, but MS took his ability to do so away from him. He was not a singer, but he decided to try singing... I find what happened next so freaking inspirational. Hear his melodious voice for yourself: https://www.youtube.com/channel/UClRrTVTqRoqP0tSgatpV1JQ. I needed this…
Sometimes I Sound Whiny…
I'm sick. I have MS (multiple sclerosis). Have had it for 22 years. First 15, symptoms came and went. Had months, many months in fact, when I was symptom-free and could work and play.... Last almost 7 years, the MS has progressed. Symptoms are persistent. Have had a new daily persistent headache for 6.5 years.…
MS Warrior talks to healthy people
MS Warrior talks to healthy people. He says some neutral things. He says some negative things. He says some nice things… Note: If you'd rather watch this as a video, go to paullima.com/ms and click on MS Warrior talks to healthy people. My name is Paul Lima and I have Multiple Sclerosis, or MS as…
Other than that, okay
It's a simple question. When asked, it's one that I have difficulty answering. Or should I say it is one that I have difficulty answering honestly. When somebody asks, "How are you?" I tell a white lie. I say, "Okay." I don't ever say "Fine" or "Good." Those would be damnable lies. But I never…
10 MS Warriors Speak…
MS Warriors Speak: Ten MS Warriors speak about their disease: how it manifests itself, what it means to them, and the impact it has on their relationships with others. In addition, MS is defined and there is information on the disease that messes with almost 3 million people world wide. Go to paullima.com/ms and click…
Ain’t No Cure For MS…
I am not a song writer or a singer…. I love Leonard Cohen. However, when I hear him sing Ain't No Cure For Love, I can't help but think Ain't No Cure For MS. So with apologies to Leonard Cohen, here is my version of his song, which you can hear on YouTube: https://www.youtube.com/watch?v=gM7vULqs31Q -…
Want to write something profound about MS, but…
I want to write something profound about MS, but... Some of us have the kind of MS that gives us 'hits' or exacerbations that last for weeks or months or longer, then disappear and we feel more or less ok, until the next hit. And the hits are different for each of us. That's why…
